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About Our Organization

The Chiari & Syringomyelia Foundation, Inc. is a national 501(c)(3) organization committed to disseminating accurate and current information about the treatments for, and best practices surrounding the management of Chiari malformation (CM), syringomyelia (SM) and related disorders. Many recognized world-class physicians, scientists and professionals have agreed to collaborate and form a superior Scientific Education & Advisory (SEA) Board. The trusted and dedicated members of our Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families, and patients, many of whom have been advocates in the CM & SM community for years. All members of the organization have the skills and passion to create, fund, and direct programs and research that will change the lives of the over one million families affected by CM, SM, and related disorders.

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